Wow...It's been about 3 weeks since I posted to this blog and it's about time for an update. Don't you think?!
Let me say...Merry Christmas, Happy New Year, and all that jazz.
Nate's been studying like mad for his Chief's Exam, which is tomorrow. I think he'll do great! Wish him luck, okay?
I've been staying busy working on crafts and making jewelry - my latest hobbies. I've also had a few doctor appointments and have been stressing over my latest surgery's incision; it's still not 100% healed.
I've been battling the pain of EDS since I've been so much more active than usual. Thankfully I have a great doctor who is continuing to titrate my interthecal pump up to a level that will control the pain.
To be honest, that about covers it. I'll try to do a better job of posting updates much more often - at least once a week, but we'll see. :-D
Showing posts with label EDS. Show all posts
Showing posts with label EDS. Show all posts
Wednesday, January 14, 2009
Friday, November 28, 2008
Thanksgiving Double Whammy
I hope everyone had a wonderful Thanksgiving! Nathan and I enjoyed a relaxed day together at home with a full Thanksgiving spread (precooked by a grocery store - hehehe). It was a great day for me because any day I can spend with Nathan is a wonderful one!
Unfortunately, before Thanksgiving I was notified that my Uncle Wally passed away in his home. I have so many wonderful childhood memories of this man who always had popsicles and M&Ms for all the kids.
If that wasn't enough, today I received a phone call from my Mom telling me that my cousin Matt passed away yesterday. Again, my mind is full of wonderful memories of this amazingly strong person. He had a much rarer type of Ehlers-Danlos Syndrome that affects the vascular system and this is what took his life.
Although my pain is under control, I'm still not healthy enough to travel for either of the funerals. It breaks my heart because both men were very important people in my life.
Again, Happy Thanksgiving! Wishing you all the best!
Unfortunately, before Thanksgiving I was notified that my Uncle Wally passed away in his home. I have so many wonderful childhood memories of this man who always had popsicles and M&Ms for all the kids.
If that wasn't enough, today I received a phone call from my Mom telling me that my cousin Matt passed away yesterday. Again, my mind is full of wonderful memories of this amazingly strong person. He had a much rarer type of Ehlers-Danlos Syndrome that affects the vascular system and this is what took his life.
Although my pain is under control, I'm still not healthy enough to travel for either of the funerals. It breaks my heart because both men were very important people in my life.
Again, Happy Thanksgiving! Wishing you all the best!
Tuesday, November 18, 2008
Can't Sleep
It's now 5:00AM and I've been awake since about 2:30AM. Since I can't sleep I figured I would post another blog entry especially since Nate won't be up for another 30 minutes to an hour.
Why am I awake? I'm excited about today! A new friend will be coming over to discuss, shop for, and work on crafts including jewelry -what fun for a woman! Earlier my mind began racing about things such as what I'll be buying at Michael's Arts & Crafts, what needs to be done in the house before she comes over, etc.
I do want to mention that yesterday I went for CT scan of my pump. They got me in and out of there really quick, surprisingly! As we were leaving I glanced at the images from the test and it was obvious, even to me, that the pump is horribly out of place. Thankfully I have an appointment with the surgeon this Friday to discuss the scheduling of the surgery.
Some crappy news. While walking (yes, walking - isn't that great!) around the grocery store last week I managed to injure my right foot seriously enough that it's still in a great deal of pain now. To make matters worse I twisted my other ankle while getting in the shower yesterday so now I've got two "gimp" feet, as my step-mom would say. hehehehehe These injuries are thanks to the wonderful medical condition called Hypermobility Ehlers-Danlos Syndrome -woo hoo!
I could go on for much longer, but I won't because my blogging will turn into rambling and that's never a good thing.
Much love to all!
~Lisa
Why am I awake? I'm excited about today! A new friend will be coming over to discuss, shop for, and work on crafts including jewelry -what fun for a woman! Earlier my mind began racing about things such as what I'll be buying at Michael's Arts & Crafts, what needs to be done in the house before she comes over, etc.
I do want to mention that yesterday I went for CT scan of my pump. They got me in and out of there really quick, surprisingly! As we were leaving I glanced at the images from the test and it was obvious, even to me, that the pump is horribly out of place. Thankfully I have an appointment with the surgeon this Friday to discuss the scheduling of the surgery.
Some crappy news. While walking (yes, walking - isn't that great!) around the grocery store last week I managed to injure my right foot seriously enough that it's still in a great deal of pain now. To make matters worse I twisted my other ankle while getting in the shower yesterday so now I've got two "gimp" feet, as my step-mom would say. hehehehehe These injuries are thanks to the wonderful medical condition called Hypermobility Ehlers-Danlos Syndrome -woo hoo!
I could go on for much longer, but I won't because my blogging will turn into rambling and that's never a good thing.
Much love to all!
~Lisa
Wednesday, November 12, 2008
Medical Update
In the near future I will write a post about my struggle with Ehlers-Danlos Syndrome and Dysautonomia, but for today I simply want to let you know how today's doctor appointment went.
I saw Dr. Frease, my Pain Management doctor who has rescued me from a life of excruciating pain by having a MedTronic pump implanted in my abdomen that delivers Dilaudid (synthetic morphine) directly into my spinal fluid. Unfortunately the pump has begun jutting out of my side and need to be "re-tied" so it stays in place and no longer annoys me or causes me pain. This means another surgery, but a minor, one day surgery.
In the meantime, Dr. Frease will continue to increase the amount of pain medicine going into my system. Right now I have no pain while resting or remaining inactive, but when I am active in anyway I can come down with an excruciating headache and joint pain. The increases should prevent the pain caused by being active.
On a side note, we received the results of our cat's blood work. The vet said his blood work came back amazingly well for a 13 year old cat and he is in great health! Wonderful news!
I'll try to post more often.
I saw Dr. Frease, my Pain Management doctor who has rescued me from a life of excruciating pain by having a MedTronic pump implanted in my abdomen that delivers Dilaudid (synthetic morphine) directly into my spinal fluid. Unfortunately the pump has begun jutting out of my side and need to be "re-tied" so it stays in place and no longer annoys me or causes me pain. This means another surgery, but a minor, one day surgery.
In the meantime, Dr. Frease will continue to increase the amount of pain medicine going into my system. Right now I have no pain while resting or remaining inactive, but when I am active in anyway I can come down with an excruciating headache and joint pain. The increases should prevent the pain caused by being active.
On a side note, we received the results of our cat's blood work. The vet said his blood work came back amazingly well for a 13 year old cat and he is in great health! Wonderful news!
I'll try to post more often.
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