It's Been a While...

Wow...It's been about 3 weeks since I posted to this blog and it's about time for an update. Don't you think?!

Let me say...Merry Christmas, Happy New Year, and all that jazz.

Nate's been studying like mad for his Chief's Exam, which is tomorrow. I think he'll do great! Wish him luck, okay?

I've been staying busy working on crafts and making jewelry - my latest hobbies. I've also had a few doctor appointments and have been stressing over my latest surgery's incision; it's still not 100% healed.

I've been battling the pain of EDS since I've been so much more active than usual. Thankfully I have a great doctor who is continuing to titrate my interthecal pump up to a level that will control the pain.

To be honest, that about covers it. I'll try to do a better job of posting updates much more often - at least once a week, but we'll see. :-D

General Update

I must say once again that it is so nice to have Nathan home again. I know he really enjoyed his time in Louisiana and it was only two weeks, but it felt much longer and I missed him terribly!

Papa left on Saturday morning; it was sad for him to leave. Nate and I really enjoyed his company and all of his help while he was here. He even rearranged our living room for us saving me and especially Nathan, a ton of work! If you read this, thank you Papa!

My incision (from my surgery to tie down my pump) is healing much slower than I'd hoped and is still incredibly painful. I'll call the surgeon's office tomorrow to make a follow-up appointment and to ask about the slow healing and severe pain. To add to the annoyance, I have a rash that covers my entire belly! Part of it is from the adhesive from the tape holding down the bandage and the rest is from the binder I have to wear until Christmas Eve. My belly is covered in red, itchy bumps - SO annoying!

I also have to contact my primary doctor tomorrow because I've managed to sprain my right ankle and injure my left ankle too. Both feet are so swollen they feel like giant bruises if I walk or simply touch them.

When I get answers from my doctors, I'll be sure to post another update.

Nate's Home & I Can't Sleep

I'm so happy to have my awesome hubby home! Nate had been in Louisiana for two weeks, which felt like a month to me! When he's not with me it's like my right arm is missing. (I love you babe!) I'm relieved that he made it home safe. His flight was delayed due to bad weather and about five minutes after he landed it started to sleet and we had a brief ice storm. What timing!

It's 1:47AM and I can't sleep. This is nothing new. Lately I'm able to fall asleep quickly, but can't stay asleep and tend to get up for a couple hours around this time.

I know these blogs have been relatively boring lately, but my life isn't exactly filled with excitement. I'm hoping to start making these post more interesting, but I'm not sure how I'm going to do that. Just don't give up on us!

Much love and many hugs to all!

Thanksgiving Double Whammy

I hope everyone had a wonderful Thanksgiving! Nathan and I enjoyed a relaxed day together at home with a full Thanksgiving spread (precooked by a grocery store - hehehe). It was a great day for me because any day I can spend with Nathan is a wonderful one!

Unfortunately, before Thanksgiving I was notified that my Uncle Wally passed away in his home. I have so many wonderful childhood memories of this man who always had popsicles and M&Ms for all the kids.

If that wasn't enough, today I received a phone call from my Mom telling me that my cousin Matt passed away yesterday. Again, my mind is full of wonderful memories of this amazingly strong person. He had a much rarer type of Ehlers-Danlos Syndrome that affects the vascular system and this is what took his life.

Although my pain is under control, I'm still not healthy enough to travel for either of the funerals. It breaks my heart because both men were very important people in my life.

Again, Happy Thanksgiving! Wishing you all the best!